After my daughter Morgan passed away i discovered there are very few places for people to find out what triploidy is and how it effects both the baby and the family! I have now decided to start this blog and hopefully it will answer some questions for people who are going through something similar.
On the 24th July 2008 i went for my usual 34 week check up, i had had a blissful pregnancy with no worries or complications. She was our first child!There had been a little confusion after my first scan but we just assumed my dates had got mixed up!! Now looking back, morgan had not been growing from the start of my pregnancy. However at my appointment the docs suddenly discovered the baby was not growing correctly, she was about the size of a 28 week old baby, and she had no fluid around her, i was rushed in for emergency c section and my daughter morgan was born just before 9am on 25th July. She weighed just over 2 pounds but looked and seemed perfect. although the docs told us they were doing chromosome tests and something may be wrong we were so hopeful, i had no reason to be anything else. .morgan was doing well, she took the breast milk well and they doubled the feeds until she was on 12mls every 2 hours which was great. she did not need a ventilator or oxygen, she was strong and perfect but just soooo tiny.
she continued to do well but two weeks later we were told she had tripoloidy with no chance of survival, it was a huge shock and we were devastated, it was worse than we had ever imagined. Triploidy is a very rare chromosome disorder and very few babies are born alive, let alone survive more than a few hours. Since this has happened i have spoke to many people who lost their baby to triploidy but most of the babies were miscarried or died before birth, only a tiny amount actually lived for a few hours.
We decided to take her home, there was nothing the hospital could do and we decided we wanted to spend our limited time together in our own home. we had 4 precious days with her at home, she was just like any other baby except tiny, we had sleepless nights with her and we showed her off to our visitors. her grandparents came to stay and they spoiled her she made us laugh and cry all at the same time!!
we took her to hospital to have her feeding tube changed on the 14th August and she suddenly but peacefully passed away in my arms. again i was shocked and devastated we thought we would have longer, did i make the most of our time together, why did she not get to meet more of the family.... but in the end she did not suffer and that was my wish
we are beginning to put our life back together but i wanted to share my story,. its tragic and devastating but i had my daughter home and got photos and shared her with my husband and reading other stories i realise maybe i was luckier than i think... i had that chance and maybe I can now offer hope to others awaiting their triploidy babies arrival.